It is hard to believe, but RPSupport.org is almost SIX MONTHS old and I am so excited to announce three HUGE improvements! I knew the day would eventually come that I would not be able to sustain maintaining the site all by myself and that day is here. I am blessed that my best friend, just happens to be as much of a computer geek and passionate about community causes as I am. As my BFF, she was thrust into the role as silent partner from the beginning and never seemed to tire of listening to my crazy ideas and lofty goals and as always, she supported me, gave me sound advice and kept me focused on the task at hand (NOT an easy job!). So, I somehow talked her into joining me on this crazy journey! Some may question the wisdom of running a website with your best friend, but we have worked on several community projects over the last eighteen years and we actually work together really well together. (Or, we just have tons of fun!) For all of our similarities, our educational and professional backgrounds are vastly different. While my background is nursing, Kerri has degrees in both marketing and education and has successfully run multiple community and volunteer organizations. Since this website is as much for the caregivers and support systems of those with Low Vision, Kerri will be able to provide the perspective of what it is like to support and love someone through vision loss.
The second change is Retinitis Pigmentosa Support is now Low Vision Support Group! When RPSupport.org was started, I vowed to make this a collaborative site dedicated to providing support for people with Retinitis Pigmentosa (RP). It became immediately obvious that people with low vision from any sight-stealing condition could also benefit from support so we are in the process of re-branding everything on the site to include low vision from any cause. The Retinitis Pigmentosa area will remain intact and our goal is to replicate that by having a condition-specific area for all diseases that cause low vision.
Finally, we decided to commemorate these changes with some design changes, most notably, our logo is different. We think it better represents what the site is and look forward to your feedback. Please take the time to register, post in the community and let us know what YOU need! We vow to continue to offer updated and relevant information to you and evolving to meet your needs. THANK YOU to our members and we cannot wait to see where this part of the journey takes us!
Please watch this video. II am anxious to hear your thoughts. I found it on another blog I follow (The World The Way Eye See It). Essentially, it is a sighted person acting blind to test people’s honesty. The results surprised and disappointed me that there are people out there who take advantage of vulnerable people. I know in my head that happens, but it is hard to watch.
THE ONLINE COMMUNITY IS READY!
I have spent the last few months working on this and I have tested, repaired, restored, broken, re-tested, re-configured, re-imagined, trashed then started all over again and it’s FINALLY ready!
Just a little housekeeping first: Unfortunately,RPS.org has already been the victim of a cyber attack so I have installed features that will (hopefully) prevent any future attacks. I know these things are a pain, but they are necessary evils in today’s internet where hackers and robots roam free and can take down any little community with the click of a mouse.
- Registration is required in order to participate in the community.
- On your first four post, you will be assigned the rank of NEWBIE but that status flips to MEMBER on post #5.
- Newbies will see a “Math Required” field and will have to answer a simple math question before the posts will publish. This goes away on post #5.
Get started now!
TOOLS TO HELP YOU GET STARTED:
COMMUNITY QUICK START GUIDE: